Due to the fact that we deliberately isolate CF patients from eachother, many CF parents feel disconnected from others who share their experience. In light of this we’re setting up a peer support network and will be looking for a parent in each of the following areas to co-ordinate a peer support group (essentially a regular catch up for CF parents in that area).
The peer support groups will be run informally by the parents, for the parents. They can be as often or infrequent as parents decide they want them to be, we just want to help you get started and we’ll help co-ordinate details to join on the Facebook page and also offer support and channel any information that comes from the care team.
If you’re interested in being the ‘go to’ person for your local area, we are looking for one person (or more) in the following areas to put their hand up and organize the first coffee meet up.
- Northern Beaches
- North Shore
- Eastern Suburbs
- Western Suburbs
We recognise there are many families living further afield and we will look at the spread of families in those areas and identify the best way to engage the most families in each region and also whether we can connect families with a support group remotely.
If you are willing to put your hand up and organize the first coffee meet up in your area, please contact Kylie Black on sustainablefuture@hotmail.com.
