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Cystic fibrosis April 10, 2015April 10, 2015

Nathan Charles Unstoppable

An inspirational video of the rugby player who got to the top and played with the best. He also happens to have cystic fibrosis.

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Filed under: cystic fibrosis, fitness, nathan Charles, rugby

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Big news for DF508 carriers

On May 12, 2015, the Pulmonary-Allergy Drugs Advisory Committee of the U.S. Food and Drug Administration (FDA) will hold a hearing to discuss Vertex Pharmaceuticals’ new drug application for approval of the lumacaftor/ivacaftor combination therapy for the treatment of cystic fibrosis in patients age 12 years and older who are homozygous for the F508del mutation.

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