Register for The Kaleidoscope Project
Posted on September 16, 2016 by CF Parents
Engaging Children and Families in Research – a one day workshop
This one day workshop brings together children, families, communities, and health professionals to learn and discuss how to engage children with chronic conditions and their families in research. The forum will be facilitated by Sally Crowe from the United Kingdom, who is a world-recognised expert in patient engagement, a member of the British Medical Journal’s Patient Panel and former Co-Chair of the UK-based James Lind Alliance (JLA), which facilitates research priority setting partnerships globally.
Who can attend? Children (aged 11-18 years) with a chronic condition, adult family members (with children aged 0-18 years), caregivers, patient advocates, healthcare providers, policy makers, and researchers.
When? 9:30 am – 4:30 pm Saturday 15th October 2016
Where? Mercure Hotel, Sydney NSW, Australia
Registration: Registration is free and limited to 80 participants. Please register your interest here http://www.thekaleidoscopeproject.com.au/national-forum-2016/ and a confirmation email will be sent to you within three days of submission.
If you have any questions, email Dr Pamela Lopez-Vargas at pamela@thekaleidoscopeproject.com.au
The Kaleidoscope Project
Supported by NSW Ministry of Health
Better Treatment 4 Kids Network
The Children’s Hospital at Westmead
The University of Sydney
