Diet Check: Heart Healthy Fats

Heart Healthy Fats [Standford University CF Centre]
BY MARIANNE REES SCHROEDER, RD
Milk, butter, cheese — For most adults living with cystic fibrosis, those
food items are staples in an everyday high-calorie, high-protein diet.
Fat found in dairy products pairs well with most meals, and is excellent
at boosting calories. But don’t be fooled. Dairy is not the only option
available. You’re probably well aware of avocado and trail mix, but what
sets these fats apart from fats found in dairy and butter?

Continue reading “Diet Check: Heart Healthy Fats”

Bacterial Resistance & Infection Control

Bacterial Resistance and Infection Control – Stanford University CF Centre
by Richard Moss, M.D.

Many patients and families are concerned about infection control. First, it is essential to understand what we mean when we talk about resistance of bacteria to antibiotics. What does it really mean? Continue reading “Bacterial Resistance & Infection Control”

Like a hands free nebuliser?

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“At MakerHealth we believe in democratizing the tools of health making around the world. Whether it’s a hospital bed, smart pill bottle, or an improved triage mobile phone app we believe that design should be transparent, hackable, and enabling for everyone to be the designers and makers of their own healthcare solutions.”

Like all industries, health is being disrupted every day by changes and progress in technology. It brings people together, it democratises the flow of information and research,  it  empowers  all parties and with this increased degree of transparency and accountability comes the human urge to connect and to share. To seek out others who might understand where we’re at. To crowdsource ideas and to create community solutions. Maker Health is doing just that.

We believe everyone can be a medical maker. In a world where health care technology is increasingly black boxed, and unaffordable, we found a stealth community of innovators working around the clock to make health better, by making their own devices to make us better.

I recently met up with another mother at the North American Cystic Fibrosis Conference and like all speakers who spark the mind; I stalked her online and found her blog 66 Roses but also a great post where, faced with the prospect of endless nebuliser treatments and hoping to find a solution to a hands free nebuliser, she crowdsourced the idea on Twitter, got back a load of responses and posted it herself on Maker Health to help with others.

Good share.

John Hopkins’ CF research review

If you’re looking to keep abreast of the latest research on key topics, the John Hopkins CF Centre in the US publishes a regular newsletter called e-cysticfibrosis review which basically publishes a peer review of a whole bunch of research into critical care topics.

It’s set up for medical care teams to subscribe to but anyone can join it. They’ve just done a brief summary of pseudomonas research and treatment protocols for anyone who is interested.

If you’re keen, you can sign up here  e-cysticfibrosis review

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