We recognise that looking after a child with CF can sometimes be a daunting experience. You’re learning as you go and because we as parents don’t tend to mix together very much (due to cross infection risks), often parents can feel quite alone.
If you’d like to get in touch with another parent for advice or support, please drop us a line here and we can put you in touch with someone. Alternatively there are many Facebook groups and don’t forget, CF NSW offers many ways to connect and get involved with other CF parents and families.
We’re in the process of setting up a series of support groups and mentor frameworks to ensure that if you ever want to get in touch and talk to another parent you can. Most of us are happy to share our experiences and if you’re happy to volunteer to set up a support group in your area, please let us know.