New diagnosis mentor framework

All of us have been through that initial diagnosis and know how overwhelming that time can be. To help support you through this diagnosis period as you come to terms with what cystic fibrosis is all about, we’ve put together a group of willing parents who are more than happy to support you through this period.

This means that for those of you who are only recently grappling with a new diagnosis, we can put you in touch with another parent in your local area who can shed a bit of light on their personal experience with CF and provide a bit of emotional support.

If you have been newly diagnosed and would like to get in touch with another parent, you can contact Amanda Thomsen the Sydney Children’s Hospital CF nurse or alternatively email jen@ecooutdoor.com.au and we can put you in touch with another parent who lives close by.

Don’t be afraid to reach out for support during this difficult time; having someone who has been through it all before can make a very real difference.

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